Dementia expected knowledge of Nurses in Adult Social Care

Further reading : Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Chapter 3: Raising awareness and understanding • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 1: Know the early signs of dementia

Legislation • Mental Capacity Act 2005 • Care Act (2014)

Person-centred Dementia Care

Treating the person living with dementia with dignity and respect,

Understand and capturing the person’s history/lifestyle/culture/choices and preferences,

Shifting own point of view to the one of the person living with dementia, Providing opportunities to interact with others/have conversations and relationships,

Creating opportunities for the person living with Dementia to try out new things and participate in activities they enjoy,

Involving the person living with dementia/families and carers in producing and developing a person-centred care plan

Video:

Person-centred care in dementia - YouTube

Person Centered Care - Dawn Brooker - YouTube

Guidance •

Person-centred care | Alzheimer's Society (alzheimers.org.uk)

Safeguarding people with dementia - SCIE

Person-centred care | Alzheimer's Society (alzheimers.org.uk)

Person-centred care | Dementia: assessment, management and support for people living with dementia and their carers | Guidance | NICE

Thomas Kitwood's Person-Centered Care for Dementia (verywellhealth.com)

Creating a life story for a person with dementia - Dementia UK

Life Story Work (ageuk.org.uk)

dementia-uk-my-life-story-template.pdf (dementiauk.org)

Care Fit for VIPS • NICE quality standard [QS1] (2010), Dementia quality standard • NICE Guidelines [CG42] (2006), Dementia: Supporting people with dementia and their carers in health and social care • Open Learn: The importance of person-centred approaches to nursing care • Alzheimer’s Society: Person-centred care

Legislation • Mental Capacity Act 2005 • Human Rights Act 1998

Communication, Interaction and Behaviour in Dementia

Active listening and effective communication strategies,

use of sensitive and inclusive language/cultural competence and reminiscence,

Speaking calmly/clearly and patiently – adapting communication style to each person with dementia,

Adaptive/enabling environment to mitigate sensory difficulties and unnecessary distractions,

Oral care: pain free mouth/provision of any supportive equipment to enable communication: dentures, hearing aids, spectacles, voice amplifiers and referrals to specialists i.e. S.A.L.T,

Life story work,

Involvement of family and carers and their expertise in achieving effective communication with the person living with dementia,

Non-verbal communication: body language/pictorial and alternative communication methods,

Distressed behaviours and unmet needs,

Acknowledging feelings and validating emotions.

Videos:

Kids Interview People With Dementia – Alzheimer’s Society, Dementia Action Week 2019 – YouTube

Gladys Wilson and Naomi Feil – YouTube

Old Man In Nursing Home Reacts To Hearing Music From His Era - YouTube

Guidance

Communicating with someone with dementia - NHS (www.nhs.uk)

How to communicate with a person with dementia | Alzheimer's Society (alzheimers.org.uk)

Communicating with a person with dementia - SCIE

Tips for communicating with a person with dementia - Dementia UK

Non-verbal communication and dementia | Alzheimer's Society (alzheimers.org.uk)

Creating a life story for a person with dementia - Dementia UK

Life Story Work (ageuk.org.uk)

dementia-uk-my-life-story-template.pdf (dementiauk.org)

Coping with distress - Dementia UK

What causes changes in behaviour in people with dementia? | Alzheimer's Society (alzheimers.org.uk)

Behavioural and Psychological Symptoms Associated with Dementia (BPSD) (scot.nhs.uk)

Communication skills in social care (skillsforcare.org.uk)

• The VERA Framework (Blackhall et al, 2011) • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 3: Communicate sensitively to support meaningful interaction • Alzheimer’s Society (2012), Factsheet: Communicating • Skills for Health (2015), Stand By Me [Person-centred communication in dementia care]

Legislation • Mental Capacity Act 2005 • Care Act (2014)

Pharmacological and non-pharmacological interventions in Dementia Care

Knowledge of commonly used medications to treat BPSD and monitoring of anti-psychotic medications,

Covert medication administration,

Main risks, side effects and benefits of using anti-psychotics, anti-depressants, anxiolytics, anticonvulsants and cognitive enhancers and be aware of the impact drugs may have on daily living, including common side effects such as taste disturbances and a dry mouth,

Tackling polypharmacy/ optimising medications/ medication reviews,

Using non-pharmacological approaches to tackle distressed behaviours: music therapy, animal therapy, aromatherapy, arts, spa and massage, community-building, co-production, cognitive behavioural therapy, counseling, cognitive stimulation therapy

Video

Treatments for dementia: The dementia guide - YouTube

NHS England — South West » Dementia Training Videos for Primary Care

Drug Discovery | Alzheimer's Society (alzheimers.org.uk)

Guidance

What are the treatments for dementia? - NHS (www.nhs.uk)

Medication for dementia symptoms | Alzheimer's Society (alzheimers.org.uk)

Medication for people living with dementia - Dementia UK

Antipsychotics and other drug approaches in dementia care | Alzheimer's Society (alzheimers.org.uk)

Dementia medication side effects | Alzheimer's Society (alzheimers.org.uk)

Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Chapter 5: Living well with dementia / sections 31 & 32 • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • Minister of State for Care Services (2009), The use of antipsychotic medication for people with dementia: Time for action • NICE Guidelines [CG42] (2006), Dementia: Supporting people with dementia and their carers in health and social care

Legislation • Mental Capacity Act 2005 • Equality Act 2010

Families and Carers as partners in dementia care

Involvement of and working in partnership with families and carers of people living with dementia,

Acknowledging carers’ needs and signposting to carer’s needs’ assessment,

Understanding family dynamics and complexities and how they impact on effective, personalized care,

Understand socio-cultural differences in the perception of the care giving role,

Communicate compassionately, sensitively, effectively and in a timely manner with care partners,

Carers’ Anticipatory grief, care guilt and care dilemmas,

Psychological and emotional support to carers and families,

Lasting Power of Attorney

Guidance • Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Objective 7: Implementing the Carers’ Strategy for people with dementia • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • NICEquality standard [QS1] (2010), Dementia quality standard • NICE and SCIE (2006), Dementia: Supporting people with dementia and their carers in health and social care • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 6: Family members and other carers are valued, respected and supported just like those they care for and are helped to gain access to dementia care advice • Department of Health (2010), Recognised, valued and supported: Next steps for the Carers Strategy • Department of Health (2014), Care and Support Statutory Guidance: Issued under the Care Act 2014 51 • Department of Health (2014), Care Act Factsheets, Factsheet 8: The law for carers • Carers Trust (2013), The Triangle of Care: Carers Included: A Guide to Best Practice for Dementia Care

Legislation • Care Act (2014) • Mental Capacity Act 2005

Living Well with Dementia

Maintaining physical activity and promoting independence,

Support with the changing needs,

Community engagement, connection and interactions for the person living with dementia,

Emotional and psychological supporting – day-to-day closeness with others,

Recognising and responding to cultural, ethnic and religious needs of a person living with dementia,

Use of assistive technologies to support self-care and connectivity with local, regional, national and global communities,

Mitigating stigma, deprivation, equity and inaccessibility,

Dementia-Friendly built environment and promoting safer mobility,

Perceptual and sensory distortions that may occur in dementia and how the impact of such distortion can be minimised by changes to the environment,

Recognising and reporting early signs of deterioration

Guidance • Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Chapter 5: Living well with dementia • NICE quality standard [QS30] (2013), Quality standard for supporting people to live well with dementia • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 4: Promote independence and encourage activity • Alzheimer’s Society (2013), The dementia guide: Living well after diagnosis

Legislation • Mental Capacity Act 2005 • Equality Act 2010

Dying Well with Dementia

Advance Care Planning

Effective Symptoms management

Proactive and compassionate End of Life Care

Understanding of cultural and religious differences associated with death, care of the dying and the deceased person

Understanding of the needs of bereaved families and friends as well as care staff including the potential for conflicting emotions

Expressing grief, seeking support and overcoming loss following a death of a person living dementia under their care

Video:

End of Life Care: Achieving dignity for those with dementia - YouTube

End-of-life care: why we need to talk about dying | The King's Fund (kingsfund.org.uk)

Guidance

My life until the end: Dying well with dementia (alzheimers.org.uk)

How to know when a person with dementia is nearing the end of their life | Alzheimer's Society (alzheimers.org.uk)

Dementia and end of life planning - NHS (www.nhs.uk)

The later stages of dementia and end of life care - Dementia UK

The value of planning ahead for the end of life when you’re living with dementia | Alzheimer's Society (alzheimers.org.uk)

pathway_report_full_final.pdf (alzheimers.org.uk)

Dear Alzheimer's: Keith's story | Age UK

Living and dying with dementia in England: barriers to care (mariecurie.org.uk)

• Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Objective 12: Improved end of life care for people with dementia • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • NICE quality standards [QS13] (2011), Quality standard for end of life care for adults • NICE Guidelines [CG42] (2006), Dementia: Supporting people with dementia and their carers in health and social care • NICE quality standard [QS1] (2010), Dementia quality standard

Legislation • Mental Capacity Act 2005 • Equality Act 2010

Leadership in Transforming Dementia Care

Understand the key drivers and policies which influence national dementia strategy and service development,

Use of evidence-based research, innovations and developments in dementia interventions and care,

Being able to disseminate and promote new and evidence-based practice and to challenge poor practice,

Ensure team members are trained and supported to meet the needs of people with dementia,

Collaborative working approach in the provision of support, care and services for people with dementia, their families and carers,

Understand the principles of equality and diversity for access to, and delivery of services.

Guidance • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 7: Managers need to take responsibility to ensure members of their team are trained and well supported to meet the needs of people with dementia and Principle 8: Work as part of a multi-agency team to support the person with dementia

Expected Knowledge of Dementia

Expected core knowledge of a

Healthcare Assistant

Resources

Dementia Awareness

Types of Dementia,

Recognising Early Signs of Dementia,

Risks identification and prevention

Guidance • Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Chapter 3: Raising awareness and understanding • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 1: Know the early signs of dementia

Legislation • Mental Capacity Act 2005 • Care Act (2014)

Person-centred Dementia Care

Treating the person living with dementia with dignity and respect,

Providing personal care to dementia-appropriate standards

Developing in eliciting and recording the person’s history/lifestyle/culture/choices and preferences,

Promoting independence and re-enablement for the person living with dementia

Promoting stimulation and engagement in people with dementia through participation in meaningful activities, conversations and relationships

Contributing towards writing and enriching person-centred care plans with the support of registered nurses, person living with dementia, their families and informal carers.

Guidance • Care Fit for VIPS • NICE quality standard [QS1] (2010), Dementia quality standard • NICE Guidelines [CG42] (2006), Dementia: Supporting people with dementia and their carers in health and social care • Open Learn: The importance of person-centred approaches to nursing care • Alzheimer’s Society: Person-centred care

Legislation • Mental Capacity Act 2005 • Human Rights Act 1998

Communication, Interaction and Behaviour in Dementia

Practising active listening and developing dementia-appropriate communication skills

Use of sensitive and inclusive language/cultural competence and reminiscence,

Speaking calmly/clearly and patiently – adapting communication style to each person with dementia,

Contributing towards a dementia-appropriate environment without sensory difficulties and unnecessary distractions,

Promoting adequate oral care and ensuring compliance with all available communication-enabling equipment

Developing skills in conducting Life story work,

Promoting and acting as a link in the involvement of family and carers and their expertise in achieving effective communication with the person living with dementia,

Awareness of non-verbal communication: body language/pictorial and alternative communication methods,

Understanding of distressed behaviours and unmet needs,

Guidance • The VERA Framework (Blackhall et al, 2011) • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 3: Communicate sensitively to support meaningful interaction • Alzheimer’s Society (2012), Factsheet: Communicating • Skills for Health (2015), Stand By Me [Person-centred communication in dementia care]

Legislation • Mental Capacity Act 2005 • Care Act (2014)

Pharmacological and non-pharmacological interventions in Dementia Care

Awareness of commonly used medications to treat BPSD and monitoring of anti-psychotic medications,

Awareness of covert medication administration,

Understanding and reporting common medication side effects and how they affect the person’s wellbeing

Using non-pharmacological approaches to tackle distressed behaviours: music therapy, animal therapy, aromatherapy, arts, spa and massage, community-building and participation

Guidance • Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Chapter 5: Living well with dementia / sections 31 & 32 • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • Minister of State for Care Services (2009), The use of antipsychotic medication for people with dementia: Time for action • NICE Guidelines [CG42] (2006), Dementia: Supporting people with dementia and their carers in health and social care

Legislation • Mental Capacity Act 2005 • Equality Act 2010

Families and Carers as partners in dementia care

Involvement of and working in partnership with families and carers of people living with dementia,

Understanding family dynamics and complexities and how they impact on effective, personalized care,

Understanding of socio-cultural differences in the perception of the care giving role,

Communicating compassionately, sensitively, effectively and in a timely manner with families and informal carers,

Psychological and emotional support to carers and families,

Awareness of Lasting Power of Attorney

Guidance • Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Objective 7: Implementing the Carers’ Strategy for people with dementia • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • NICE quality standard [QS1] (2010), Dementia quality standard • NICE and SCIE (2006), Dementia: Supporting people with dementia and their carers in health and social care • Skills for Care and Skills for Health (2011), Common Core Principles for Supporting People with Dementia, Principle 6: Family members and other carers are valued, respected and supported just like those they care for and are helped to gain access to dementia care advice • Department of Health (2010), Recognised, valued and supported: Next steps for the Carers Strategy • Department of Health (2014), Care and Support Statutory Guidance: Issued under the Care Act 2014 51 • Department of Health (2014), Care Act Factsheets, Factsheet 8: The law for carers • Carers Trust (2013), The Triangle of Care: Carers Included: A Guide to Best Practice for Dementia Care

Legislation • Care Act (2014) • Mental Capacity Act 2005

Living Well with Dementia

Promoting physical activity and independence,

Providing support with the person’s changing needs,

Contributing towards community engagement, connection and interactions for the person living with dementia,

Emotional and psychological supporting – day-to-day closeness with others,

Recognising and responding to cultural, ethnic and religious needs of a person living with dementia,

Use of assistive technologies to support self-care and indepednence

Contributing towards mitigation of stigma, deprivation, equity and inaccessibility,

Awareness of Dementia-Friendly built environment and promotion of safer mobility,

Perceptual and sensory distortions that may occur in dementia and how the impact of such distortion can be minimised by changes to the environment,

Recognising and reporting early signs of deterioration

Legislation • Mental Capacity Act 2005 • Equality Act 2010

Dying Well with Dementia

Awareness of Advance Care Planning

Contribution towards Effective Symptoms management

Proactive and compassionate End of Life Care

Awareness of cultural and religious differences associated with death, care of the dying and the deceased person

Awareness of the needs of bereaved families and friends as well as colleagues including the potential for conflicting emotions

Expressing grief, seeking support and overcoming loss following a death of a person living dementia under their care

Guidance • Department of Health (2009), Living Well with Dementia: A National Dementia Strategy, Objective 12: Improved end of life care for people with dementia • Department of Health (2015) Prime Minister’s Challenge on Dementia 2020 • NICEquality standards [QS13] (2011), Quality standard for end of life care for adults • NICE Guidelines [CG42] (2006), Dementia: Supporting people with dementia and their carers in health and social care • NICEquality standard [QS1] (2010), Dementia quality standard

Legislation • Mental Capacity Act 2005 • Equality Act 2010

Leadership in Transforming Dementia Care

Awareness the key drivers and policies which influence national dementia strategy and service development,

Awareness of evidence-based research, innovations and developments in dementia interventions and care,

Ensuring compliance with provided Dementia training and addressing training needs of continuous professional development in dementia care

Working in partnership with people living with dementia, families and informal carers, registered nurses, colleagues, management team and allied health professionals.

Awareness of the principles of equality and diversity for access to, and delivery of services.